Reassures Me There Are People Around Who Care about Me: Analyzing Meanings of Support for People with Epilepsy

Abstract Aims The study aimed to examine the nature and outcomes of social support for well-being quality life (QoL) adults with epilepsy. Methods Australian Epilepsy Longitudinal Survey's 5th Wave included Medical Outcomes Study Modified Social Support Survey on four dimensions QOLIE-31. Both numerical data open-ended responses were analyzed quantitatively qualitatively. A mixed method was used where quantitative analysis t-tests, variance block recursive regression, qualitative identified themes. Results Three-hundred thirty-two people epilepsy (PWE) participated. component showed that emotional/informational being older living alone key factors. These as well household income important in tangible support. For affectionate factors, but only a factor positive interaction. In addition, interaction predicted increased QoL. both negative supports supports. Many reported benefits having information, although some failure have their needs taken seriously by health professionals or associations. Inability drive an feature finding assistive services unaffordable. Reports accepted person is primary concern. Peer plays role here. Discussion findings factors affecting this supported number studies. This includes effects these results, it also contributes deeper understanding lives PWE. Conclusion particularly issue results demonstrate complexities obtaining appropriate forms survey took place before coronavirus disease 2019 pandemic may be phenomenon affects PWE's needs.